It is quite a painful thought to realise that some think
that by using IVF through the NHS one may have deprived someone of vital life-saving
cancer drugs. Yet, that is what I was left thinking after listening to a debate
on the radio the other day: it confirmed what many already suspected - access to IVF services is increasingly something of a postcode lottery across the country as
the NHS has continually to tighten its belt as it struggles to stay vaguely
solvent.
The programme brought memories flooding back from several
years ago when my wife and I went through two IVF cycles through the NHS. Oddly
enough, I find I struggle to remember many precise details as the whole process
lasted so many years and the stress was so tiring, putting it out of my mind has
broadly seemed the best thing to do.
Inevitably, we began with the many years of trying and
failing to have a baby, then there were the exploratory tests, there was an operation,
possibly two, there was a useless GP who lost our notes setting the whole
procedure back months, and by doing so reducing our chances of success – and
even of being accepted as patients – as we got steadily older and closer to
very inflexible deadlines.
Once we finally were accepted, after a doctor was a little
generous with my wife’s (lack of) weight, the drugs started, then the evening
injections and the final, vital, trigger injection. The latter has to be given
with such precision, the first time we did it we had to find a quiet room in
the middle of a wedding reception to administer it. Then a specimen has be
provided, the specialists do their wizardry. And then there is the waiting to
see if it worked.
And, the first time, it didn’t. What next?
Apart from the inevitable huge disappointment, I remember going
to our next appointment at the unit not entirely clear what we could do next;
it’s possible that is just my recollection. But, suffice it to say, we started
the drugs again, and another trigger injection – this time the specified time
was in the middle of the night. To my horror, I managed to bend the needle but
hoped I had administered the required quantity of the drug. Another specimen,
more wizardry, then more waiting.
This time, it worked, bent needle or not. And our
daughter has just turned 3.
Some describe this treatment as a ‘luxury’ but it certainly
didn’t feel like it at the time. According to NICE guidelines, clinical
commissioning groups (CCGs) should offer three cycles of IVF to all women of 39 or
under. When we embarked upon this path, the age limit in our area was 35 and
only two cycles were offered; it is certainly not the worst. The guidelines are
woefully ignored across the country with only 18 per cent of CCGs offering the
full service. What treatment one gets is entirely reliant on where one lives. It’s
a hopeless situation which the government is studiously ignoring; its budgeting
means that such treatments are a secondary concern.
According the OECD, Britain still spends less - in some cases
significantly so - on health per capita than many of our European
neighbours, such as France, Belgium, Germany, the Netherlands and Denmark. We
spend less per capita than Canada and Australia (and the US, though its health service is something of a basketcase).
In these circumstances, and ignoring the fact that infertility is a recognised medical condition, I can understand how someone might think that a trust
spending £6,000 trying to assist a couple have a child might reduce funds available for other therapies. We have learned so much about the importance of speed, when treating cancer, for example, that our reaction to demands for swift medical intervention, is urgent and visceral. And politicians, to extent, can make moves to answer such demands. At the same time, however, it is almost impossible to quantify the long term costs accrued due to stress, depression from infertility, and consequent long term savings from successful IVF treatment. In ways similar to aspects of mental health, it is simply easier to ignore.
Ultimately, it is a matter of ambition: It is about what sort of NHS we want - and are willing to pay for. Should the service be one which is constantly scrimping and saving, where one treatment is competing with another and there is a debate about which is apparently more 'justifiable’? Do we want a health service which doesn't aspire to be the best but instead is stuck on a permanent downward spiral? Politicians can talk about delivering the best health service in the world but this needs backing with hard cash. Putting it simply, this should not be a question of either cancer treatment or IVF. We need, and should demand, both.
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